Think eczema is just a rash? It’s actually much more.
On top of the physical, chronic symptoms — including intense and persistent itching, patches and skin dryness — eczema can affect everything from a child’s concentration in school to their ability to do everyday activities.
A new eBook, My ECZ-ellent Day at Camp, is raising awareness and understanding about the experiences of children with eczema and how, together, we can help them better navigate the challenges. The book tells the story of Taylor, a child living with eczema, who learns to overcome difficulties and have a fun day at camp.
Written for parents and caregivers, the book aims to share important tips for helping young children with eczema — as a caregiver and as a peer or friend. Here are three crucial things to know:
1. Learn as much as you can about the disease
Eczema is complex and can affect children both physically and emotionally. That’s why it’s critical for caregivers to understand how it works, what the symptoms are and how to manage it.
In addition to sharing Taylor’s summertime adventures, My ECZ-ellent Day at Camp includes a helpful field guide to give caregivers a basic understanding of the disease and its potential unseen impacts, like isolation and anxiety.
These challenges can be difficult to navigate for children and caregivers alike. That’s why www.UnderstandAD.com has even more tools and resources available to help the eczema community.
2. Find different ways to have fun
Children with eczema are often forced to avoid activities that can trigger their symptoms, like swimming. But that doesn’t mean there aren’t other options for them.
It’s important for caregivers to help their kids focus on things they can do, as opposed to things they cannot do. My ECZ-ellent Day at Camp helps show children there are always other options for them to explore and many ways to make friends.
3. Talk openly about eczema
Many children don’t know what eczema is or even how to say it. But talking about it can help spread awareness.
“My daughter Hadley is often asked questions about eczema that embarrass her,” says Ashley Ellis, whose daughter has severe eczema. “But many people just don’t understand what it can be like to live with eczema every day. That’s why stories like My ECZ-ellent Day at Camp are so meaningful.”
The eBook is one of many free resources available to caregivers at UnderstandAD.com.
Understand AD, which is supported by Sanofi and Regeneron in partnership with the National Eczema Association (NEA), has a mission to help educate the public of the burdens of living with eczema.
“NEA wants children living with eczema and their families to know that they are not alone, they have a whole big community to help support them and to help them find support in their journey,” said Julie Block, President and CEO, National Eczema Association.
Visit www.UnderstandAD.com to read My ECZ-ellent Day at Camp and discover more helpful eczema resources and videos.